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Month: February 2012

Your Story: Jeremy

Your Story: Jeremy

Given Hope by Bret’s Story

by Elizabeth Husk, November 15, 2011

Dear Mr. Michaels:

I never knew much about diabetes until March 4, 2011. That was the day, my life changed forever. The day started out with our 3 year old son, Jeremy, throwing up and having flu like symptoms (before that he looked thinner to me, was wetting the bed, drinking more water, and chewing on his sleeve). I went to work and around 10:00 my husband called me, and said he didn’t like the way Jeremy looked. Luckily, my administrators (I’m a teacher at Trinity High School, Washington, PA) told me to go home, and I called the pediatrician on my way home. They told me that if he kept throwing up and started looking lethargic to take him to the Emergency Room. When we got there we told the doctor that he had the flu. The doctor asked questions about diabetes, and then ran a series of tests on him including extensive blood work. When the doctor came back, he was carrying a meter to read his blood sugar level. At that time, he told us that Jeremy was diabetic with a blood sugar of 480. Our hearts dropped, but I thought to myself that it could be worse. The doctor said he was going to transport him to Children’s Hospital in Pittsburgh. He told us that Children’s was better equipped with dealing with juvenile diabetes. A few minutes later the helicopter came to transport him there. It was rush hour in Pittsburgh, and they wanted to get him there as quickly as possible. He was so out of it that he didn’t even know he was on a helicopter. I’ll never forget that day in my life; it was one of the dreariest days ever. We arrived at the hospital in 7 minutes, and then reality set in. After 2 days in PCU, and extensive diabetic training we got to come home. Jeremy is now 4, and he is such a trooper. He helps me test his blood sugar, and as soon as he is done eating he goes in the bedroom to get his shot (4 a day). He even calls his insulin ‘chocolate milk.’ Now, diabetes has become a part of our everyday life. My goal is to try to help fight to find a cure for diabetes.

I’m a business technology teacher at Trinity High School, and as part of our marketing classes we host an event twice a year to raise money for a charity. We recently hosted a charitable basketball game, and raffled off signed Steeler footballs and photos that were donated for our event. I’m proud to say that our students raised $1,050, which was donated to the Make-A-Wish Foundation. I would love to do a marketing project and donate all the proceeds to the Juvenile Diabetes Foundation. It would mean the world to me to be able to do something for juvenile diabetes. I also think this would be a great way to teach our students about diabetes. Any suggestions on how to make this event a success would be greatly appreciated.

Thank you for everything that you do, and hopefully some day soon there will be a cure. I just wanted to let you know that your story, gives me hope for my little one.

Your Story: Ernie S

Your Story: Ernie S

A fight for the future

by Ernie Severino, November 3, 2011

In 2006 i suffered a ruptured brain aneurysm which led to a stroke . the stroke left me unable to walk or use my right arm or hand . I mostly sit around all day in my wheelchair as i look on the computer trying to find answers and help. In July I had blood work done and now my A1C was 8.4 so I needed to start with pills . cut out all sugar in my coffee and walking a bit with cane. I have lost 22lbs and got the A1C down to 5.6 still working on it. 5 years ago I thought i would never see any grandchildren and now i have 3 need to keep up my fight

Tristan, Camp Kid

Tristan, Camp Kid

“Fear Nothing”

by Tristan, November 16, 2011

Hi my name is Tristin. I am 9 years old. When I was 2 years old I got really sick and the doctors told my mom and dad that I had diabetes. I can do everything other kids my age do but I also have to prick my finger to test my blood sugar 7 times a day to make sure it is not too high or worse too low. I test when I wake up, before all snacks, before all meals, before bed and even in the middle of the night. When my blood sugar is hi I have to get extra insulin. When it is too low I have to eat fruit snacks or a fruit juice and I miss out on activities at school. Without the insulin I take through my pump I would be very very sick and could die. The grown ups around me have to count carbs on every piece of food I eat so that I do not get too many and that the correct number gets put into my insulin pump which figures out how much insulin I need. Right now I can check myself and can find carbs on packaged food but my mom and dad and other grown-ups watch over what I do. They also have to change my site where my insulin goes every couple of days and that hurts a little but it is better than a lot of shots. This past summer thanks to Mr. Bret Michaels, I got to go to diabetes camp for the very first time. I was so excited because it was the very first time ever my mom and dad let me go somewhere without them. I got to be just a regular kid for a whole week. It was so great because every kid there was just like me….I was not alone anymore and everyone had to do the same things…testing, blousing, counting carbs, midnight checks, etc. I learned so much and cannot wait to go again this coming summer. Diabetes is hard but I really don’t mind most of the time but it sure would be nice to not have to do all of this and be like all the other kids. I will never let diabetes control me or my life…I will do what I want when I want…I just have to use make sure I check my blood sugar and take care of myself. Like Bret says…”Fear Nothing”. His diabetes has not stopped him and I will not let it stop me from reaching my dreams.

Your Story: Sabrina’s Mom

Your Story: Sabrina’s Mom

“She is MY ROCK”

by Sabrina Garza, November 19, 2011

My mother was born in 1937. Mom was diagnosised with Type I Diabetes when she was 3, almost 4 yrs old in 1941. She just turned 74 yrs of age on Oct. 29th, 2011. She has lived with Type 1 Diabetes for going on 71 years. She has always worked very hard and has always taken such wonderful care of herself.

My Mom has never let her diabetes get in the way of living her life to the fullest. She is such a giving person and has devoted her life to always helping others. She has been involved in so many different things in her lifetime….she raised my brother and myself, plus took on 14 different foster children back in the 60’s and 70’s.She has been involved with the Juvenile Diabetes Association,and even created a Diabetic Cookbook. She has made Cancer hats for the American Cancer Society, and Stillborn Baby Blankets for an Organization called Birthright, she is also a talented Seamstress, Crocheter, Knitter, Quilter, her newest love is making beautiful jewelry. She, like you has a wonderful singing voice. She recorded a Record when she was just 8 yrs old. She has sang and performed with many small town Country/Gospel groups throughout her retired life. I know this has turned into a book, but I am just SO PROUD of My Wonderful Mother and wanted to share her with you! Thanks

Your Story: Neel

Your Story: Neel

A diagnosis, a new life

by Neel Jadeja, November 16, 2011

I have been a Poison fan since I was 12 and saw them in Charlotte opening for David Lee Roth years ago. I never grew up a musician, but when I was 19, a friend wanted me to join his band and play drums. That was in 1995 and the band was Sunny Ledfurd. In 2001 we were signed to MCA Records and toured with Godsmack, Deftones, tons of other acts. Even opened for Poison/Bret a couple times. Leading that lifestyle, i always wanted to be a rockstar, led me to alcoholism. After Sunny Ledfurd was dropped, I quit that band and got into management/promotions in Charlotte and did pretty well. But I could never shake the alcoholism. Fast forward to May 2010. After another drunken blackout, my aunt didn’t think I looked too good and called 911. In the ER my blood sugar was in the upper 500’s and i was only 85 pounds. I was immeadiately admitted into ICU and was diagnosed with pancreatitis, ultimately Type 1 diabetes. I was in the hospital 2 weeks, and I was in complete shock at now being insulin dependent for the rest of my life. I dint know what I was gonna do, my A1C was 15.3. This story gets better. After I was discharged from Wake Medical in Cary, NC, I went straight to First Step Behavioral Health Center and spent the next 28 days there getting clean and learning more about my new diagnosis. As soon as I was mentally, physically, emotionally ready, i started to find out all I could and I got in touch with the Charlotte chapter of the JDRF, just to see if I could be affiliated with them, if there was anything i could do for them, whatever. Since i was a season ticket holder for the Charlotte Bobcats and i knew alot of people in the organization, I organized meetings between the Bobcats and the JDRF to see if we could have a JDRF Night at a game or just anything. We were able to form a partnership and now the Bobcats, Presbyterian Hospital and the JDRF have a working relationship and both are hosting our kickoff breakfast for the JDRF Walk Season. This was roughly a little after a year of my original diagnosis, that I got two of my things, type 1 and the Bobcats, together. Also, the day I was rushed to the ER, was the last day I had a drink, I’ve been sober since then. Here’s wheres the story gets even better. Laura Maciag, Sally Langen and Kelly Vasta with the Charlotte JDRF have asked ME to be on the 2012 Walk to Cure Diabetes Committee. I’m pretty sure Im the only one on the committee that even has type 1 diabetes. But the beautiful part is, beacuse of my music/promotions background, they have asked me to be the Chairperson of the Entertainment Committee. Our Walk is April 21, 2012 at Carowinds Amusement Park. They have the Palladium Amphitheatre, where, in 1991 I saw Poison perform with Slaughter. I would like to invite Bret to visit, perform, give me tips on being a stage musician w/ Type 1, talk, breathe, whatever. For me, this is kinda surreal, that a year and a half ago i was dying in the ER being diagnosed with this, and now I’m healthier than ever with an opportunity to invite one of my heroes, in more ways than one, to share with me in this celebration. This is all true, I was diagnosed with type 1 diabetes May 10, 2010.

Your Story: Lisa

Your Story: Lisa

Long Battle

by Lisa Henline, November 18, 2011

My daughter is 12 years old and was diagnosed at age 9. It has been a long battle for her. She was recently admitted into the hospital because she had DKA. I am sure you know what that is. We were very close to losing her. They had put her in ICU because she had swelling on the brain from this. It was the scariest thing I have ever been through. The thought of losing her just makes me sad. I still cry everyday. We have been through a lot since then and are still struggling with her. We want to try and get a group together for teens to talk to one another. This has been thought of before but no one shows up. I have never been to one but would love to try and start one. Do you have any suggestions on how to do this or go about this? Anything to help my daughter out would be appreciated. My husband and I worry sick about her and want to be there for her. She is a great kid, she does well in school and is fun to be around, she can be shy at times but once you get to know her, she will be your best friend.

Your Story: Kyle Speakman

Your Story: Kyle Speakman

Self Reliance

by Kyle Speakman

I have been a type one diabetic for 5 years now, I think there is no where near enough publicity, I honestly have to look at it like a blessing though, I was thinking about it one day and you learn so much about your body and self reliance, Our government wants us to be reliant in my opinion,that is why the majority of Americans are. I look at it like I am not going to have to be like this forever, maybe I will go to the Himalayas and meditate my pancreas back to life with the monks. Always remember the sky’s the limit, and we are all on this earth to obtain new knowledge, with enough positivity we can turn the world around.

Your Story: Don

Your Story: Don

Borderline

by Don

Over the past 2-3 years, I have been diagnosed as being ‘borderline’ type 2 diabetes. Although I know I should be exercising and eating more healthy foods, I can’t seem to get started. I know that the longer I wait, the more risk I have of becoming diabetic, and thereby having to get on meds. Any advice as to how I can get off my butt & start doing instead of ‘wishing’?

Your Story: Dean P

Your Story: Dean P

Inspired

by Dean P

Hi my name is Dean and I am a 13yr old type one diabetic. I got diagnosed for my 6th birthday party worst birthday present ever. After about 2 yrs I went on the pump and accepted that I have diabetes and have taken over most of the care for myself. I feel happy with diabetes and the care I am getting. I have met a lot of great people because of having diabetes. Iv met diabetics who have climb Mt Everest, ran in a iron man race at Camp surefire ( the only camp for diabetics in RI ). Campsurfire is awesome we learn about diabetes and play capture the flag and no parents allowed. I have been following your story and it has impacted a more positive attitude toward diabetes. I saw you on the apprentice and was worried about your daughter at the time I have been following since. We have had 2 other diabetics come and talk to us at camp. The Everest climbers taught us further about how they deal with diabetes . If okay with you I would like you to come down to our camp to tell us your story. Thank you and continue having a good life.

Your Story: Rita DiCarlo

Your Story: Rita DiCarlo

Live Kidney Donor and (Sugar-free) Candy Maker

 

“PIZZA is 4 Suckers”

by Rita DiCarlo, November 2, 2011

HI! I am a live kidney donor to my friend in Detroit 10-03-07. Best day of my life! I am also a dialysis nurse and have a doctorate degree as a chiropractor. I love your website!

**I am jumping ahead of myself by saying anything but, I am really so touched by all of the charitable work you do. I am working on a new sugar free candy that tastes like PIZZA! It is called, “PIZZA is 4 suckers” and will hopefully be out in January. I have been trying to figure out how to do it for about 9 months now. Finally got it!

Life has been quite an adventure. *My sugar levels have been rising and I am a PIZZA ADDICT! That was the impetus for inventing the candy! I hope you can try it and I look forward to being able to help you fight the cause, make it easier for people and, contributing to the charities and organizations. PLEASE, let me know if you ever need me to speak. I LOVE talking about being a kidney donor. Thank you for your time.

November 9, 2011

I did not mention how excited I am to present this pizza candy to all the kidney patients including diabetics as well as cancer patients, etc. I am ESTATIC to present it to them! THANK YOU for allowing me to share and hopefully helping change people lives if only to give them something to laugh and smile about for a few minutes!